January 2017 week: 3
I came across a TedTalk yesterday.
On Wednesday I had a check-in with my doctor regarding the meds I am taking and my overall well being. For a while now we’ve been working under the assumption that my diagnosis of Fibromyalgia some years ago is still valid. I’m on medication for depression (diagnosed in 2003 with chronic depression) and high cholesterol (because heredity is a thing). Fatigue has always been an issue. until recently I was able to manage it. Several months ago I went in to talk to my doctor about it. Based on the Fibromyalgia diagnosis and the depression we decided to try adding a third medication.
Two weeks ago it stopped working. This week my doctor actually told me she didn’t know where to go or what to do. We are attempting an adjustment with the medication, but I’m not sure it will work.
Later in the day I saw this talk.
Just like a lot of others my idea of chronic fatigue syndrome barely scratched the surface of what the disease actually entails. The term chronic fatigue gets bandied about a lot. Just as with many autoimmune diseases there is always more than you first realize.
So I looked up Myalgic Encephalomyelitis (ME) and read up on it. My primary source has been the MayoClinic website. What I read there made me pause. Of the symptoms listed, and I realize it’s not complete, I have quite a few. One particular symptom stands out. That of
- Pain that moves from one joint to another without swelling or redness
From the very first time Fibromyalgia was even brought up I was very specific about why type of pain I had. It moved. It wasn’t stationary like many others that I know who were diagnosed. According to the blood work that has been done over and over again there are signs of inflammation that is steadily rising but where is unknown.
What if I don’t have Fibromyalgia. What if it is actually ME. I’m not sure the diagnosis would make much of a difference. Both are autoimmune and essentially have very little research going on right now. I’m not about to self-diagnose so I’m going to make an appointment to talk with my doctor about the possibility.
I’m not sick! I had a cold all last week. It was not fun.
The January Designer Challenge that I set myself looks like it’s going to work. I’m really looking forward to sharing what it looks like.
My reading is actually going quite well. I’m halfway done with a book that is going to be discussed on Sunday at book club. And I’m on chapter 5 of Lean In.
Another random thing: I found a bar for my industrial piercing finally! It’s taken some time and I don’t think it will be the only one I have, but it’s perfect to start with. I’ll share a pic when it comes in.